Lived Experience Forum

[ClockFace]

I had an appointment with my new pain managment specialist. My understanding was that we would be looking at alterating my medication regime, like lowering one and adding another and looking at a spinal cord stimularot. Well, we did both kinda. 

She is open to the idea of a spinal cord stimulator however, not while Im taking the level of pain medication Im on. Basically, she is of the opinion that I have become hypesensitive due to the amount of pain medication I take. My history shows that the way they have treated me with pain medicaition has not been the best and wouldnt be the way they would treat it now. 

I dont really understand, if Im in pain, really severe pain then it stands to reason that I would be given pain medication, what do they do otherwise? Are you left to suffer in pain?

So, now I have to some how reduce my reliance on my pain medications. I have to start with a pain clinic to help. The pain doctor was really good and all but I cant really wrap my head around how I manage my pain without pain medication, when I have no other skills to manage it other than pain medication. They now want to take that away before they put in a device to treat the pain. Why didnt they do that before allowing my levels of pain medication to get this high? Why wasnt the option given rather than more pain medications? It wasnt like I wasnt seeing a pain management specialist, he was who increased the pain medications. 

I get that they cant go straight to the spinal cord stimulator as any time they touch my back for anything it flares up. But Im not looking forward to the future of things in regards to my pain. Im trying to reduce now already, because I am that kind of idiot. Its not fun already. The pain management specialist I am seeing now is expecting it will take 2 years at least for me to deal with the level of pain medication Im on now. 

To add to the fun, she has given me and I have made an appointment with, a specialist physio that is trained to deal with people like me who deal severe chronic pain and make programs that have this in mind. Thats because everytime I deal with a physio, we do a program and my pain worsens so quickly and I cant keep up with it for more than a couple of sessions. It will be interesting if he can get something to work. 

[Dimity]

@ClockFace hopefully the pain clinic and specialist physio will have some answers to those questions. But 2 years sounds a long time. Fingers crossed it's quicker than that.

[Patchworks]

@ClockFace that sounds tough, good you have a team to help you.

@Dimity I do stretches in the mornings. It's not easy but I find it helpful 

[Appleblossom]

I spend a heap of time researching physio online lately @Dimity @Emelia8 @Shaz51 @Patchworks @ClockFace 

@Dimity Answered on other thread before I read this .... lol ... yep the 'getting down' and the 'getting up' seem to be the big challenges. Yes figuring out the good pain and the bad pain ... a stretch is not necessarily pain.  So hard for me to figure out.  Duh!  I do think it is worth it for me.  Cmon, Off the couch Apple. ON THE FLOOR!

See ya round

Apple

[Shaz51]

hello @Emelia8 , @ClockFace , @Patchworks , @Dimity , @Appleblossom 

a busy morning this morning -- no work this week due to the floods 

paying for the busy morning now -- ouch 

[Patchworks]

Hi @Shaz51 I hope you are going ok? I've been praying for the people in the floods. It looked severe from the TV news. 

Also, a few people said that they have trouble getting onto the floor for stretching. I have a firm mattress and so I do my stretches on the bed when I wake up. Otherwise I doubt I'd do them 🙂

[Shaz51]

Thank you for the tag @Patchworks , how are you going today 

Hello @Dimity , @Appleblossom , @ClockFace , @Emelia8 

[Dimity]

Hello @Shaz51 

Hello @Patchworks thanks for the suggestion but my mattress isn't firm enough. It's getting a bit easier so I'll persevere. 

[Shaz51]

Hello @Dimity , full of aches last night 

Once I got moving this morning it was OK 

@Blackbird11 , @Jynx , do you suffer from back pains 

[Blackbird11]

No @Shaz51 

I had bad back a long time ago, but rarely feel pain now.

It's tough,hope you can ease the pain.